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Tough Love. Timmy Moves to a Residence

Posted on Sun, Nov 14, 2010
 

By Paula Kavolius

It’s been five days since Timmy began a new phase in his life - living in a residence and not with our family.

I am sitting here unable to move.  I am sad beyond words.  It’s not because I believe I have done the wrong thing. I am sad because I miss him beyond words. The house is so quiet without him and the wake he left can only be compared to a tsunami. Tears are falling on my keyboard as I write and I can barely see the keys. His clothes are scattered throughout the house, a sock in the living room, his shorts on his bedroom floor, his coats on the coat rack.  All are a reminder that he is not here and every time I pick up one of his things, I am reminded that life has changed, perhaps forever.

How can a boy with so much love and laughter in his heart wreak such havoc? How can a boy with such a beautiful smile and love for life have such impulse control issues?  I remember asking the neurologist one day, why can’t he talk?

He understands so much.  She replied, when you can unlock speech, you will be awarded a Nobel Prize.  I realized the magnitude of our challenge that day.

I sit here wondering how in the year 2010, we can’t figure out a way to control hair trigger responses, or angry outbursts, or why a child would bang their own head in frustration. I wonder why we don’t have a handbook for handling kids that have behavioral challenges.  I mean one that works.

The truth is there are no playbooks for any kids and there never will be.  The more we know, the less we know.  Basically, we can’t control our children any more than we can control the sun and the rain.  We can only learn to manage our lives around what life deals us.

What’s next?  Faith teaches me that all will work out perfectly in His perfect plan.

I believe that, but it’s the walking part that is the hardest part.  I know we have the ability to choose - love, joy, peace, compassion, trust, etc. – but what do you do when you don’t have the strength to choose?  I guess you rest.

It dawned on me that our struggles mirror the struggles of so many others; a husband who puts his wife in a nursing home, a mother who buries her child, a father who puts his son in a rehab facility.  All have varying levels of intensity and pain and duration but all are excruciatingly difficult.

My husband asked if I wanted to go to my middle son’s football game and I don’t want to do anything.  I know I need to get moving, but it’s too hard. Everything is.

Maybe I’ll call the house where Timmy is staying and ask how he’s doing again.

Maybe he needs me. I think for now, I will look for my sock. Baby steps.

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COMMENTS

Oh Paula, you face such huge daily challenges with such amazing grace. And yes, thanks for making me cry this morning at my keyboard...it's a good reminder of what's truly important in this life. xo!!

posted @ Sunday, November 14, 2010 11:29 AM by Maura Ronan


God Bless You and your family. That must have been the hardest decision you have had to make. You are in my prayers.

posted @ Sunday, November 14, 2010 11:54 AM by Cindy Albert


The most amazing thing about you, Paula, is your faith in His plan. You get that more than anyone else I have ever known. I am so sorry you are in pain right now. I promise that time will take the pain away, bit by bit. Until then, surround yourself with people who love you and Timmy. It will help, I promise. Love and tight hugs! 
 
Kerry

posted @ Sunday, November 14, 2010 11:59 AM by Kerry Marino


Paula,  
I'm very sorry it had to lead to that point, but from what I have witnessed, you've done a great job raising him, and even though it's very difficult now, I know everything happens for a reason and things WILL work out. Keep your head up, talk with family/friends, God and let me know if you need anything. 
Best,  
Denae

posted @ Sunday, November 14, 2010 12:25 PM by Denae


Thank you all for your kind words and support. 
Those of you that know me well, know that I am not a person that puts my life "out there" but I thought, with this one...it represents all that I am trying to do to help others...Tim's journey and our family's journey is one story, but the real story is in the every day heroes that help others along the way-people like Timmy, etc....That is why I share our story and know how very thankful and blessed we are to have all of you! 

posted @ Sunday, November 14, 2010 12:40 PM by Paula


God Bless you and your family Paula. Thinking of you all and praying for all of you. xo

posted @ Sunday, November 14, 2010 1:09 PM by Mary King


When you feel like God has shut doors , you know a window will open somewhere. You have great faith, courage and drive. By sharing your life with the world you give the rest of us the courage to make hard decisions and let us know we are not alone. Keep your chin up, it will all work out in the end. Much love and prayers to you and your family- Maura

posted @ Sunday, November 14, 2010 2:51 PM by Maura Clow


The hardest thing in life is a decision....and I know this is not an impulsive decision but a long, well thought out ponder with hours of thoughts and prayers to get to this point. I'm glad you can express yourself and crying is OK as you don't want to keep your sadness inside:( Writing down 'laughable moments' or pulling from the memory of funniest lifetime experiences may be helpful during this difficult time. Do we need to make a revisit the 'bowels' of MGH to where the first anesthesia was given and see some of the "old time portraits" of some famous physicians....Salk, Welby etc??? Look in the mirror and give yourself a big HUG as you have have done and wanted the BEST for Timmy and in doing so you have to suffer for him to endure. I'm sure Michael, John and Mark are hurting as bad but are not as able to communicate this....Men from Mars...women from Venus. Life isn't easy but with family and friends it helps.... XXOO Jan

posted @ Sunday, November 14, 2010 6:49 PM by Janet


Oh Paula, 
 
I am so sorry and see the tears in your words - baby steps 
 
I am amazed at what you have selflessly done for so many others and that you have made it this far. 
 
You are a wonderful blessing to all of our families, but mostly to Timmy. 
 
Sending good karma, hugs, tissues & love your way. 
-Carrie Howland

posted @ Sunday, November 14, 2010 7:24 PM by Carrie Howland


Just as you praise the angels who are taking care of Timmy now, you are also an angel caring for all who walk through the doors of House of Possibilities. When Timmy comes home for Thanksgiving, you'll count multiple blessings.

posted @ Monday, November 15, 2010 9:21 AM by Kathleen


Your words and strength inspire me. Thank you for sharing from your heart and speaking directly to mine.

posted @ Monday, November 15, 2010 6:02 PM by Julie


Hi Paula, I agree with what everyone says here. I can only imagine what you are going through now. My feeling is that the decision is really out of our hands in these things, isn't it? You know Timmy better than anyone and even though you are feeling sadness,anxiety, and emptiness you are the one who knows what is the best for him to grow. It takes faith and strength to send him out from the nest but you know this is best for him. And you will be refreshed and ready to provide what he needs from you when he's home: the deep and abiding love from his mom and his family.

posted @ Friday, November 19, 2010 12:13 PM by Geri


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